Emerson’s trip to the OR went well yesterday… she was very happy to wake up & has moved on to obsessing about other things now :). The brain MRI showed atrophy, which didn’t come as a big surprise, but no tumor – a relief!
After a valiant effort in the OR, we were saddened to learn that Emerson has lost yet another access site for central line placement. It leaves her now with a line in her very last site – a right internal jugular (neck) vein. It may all be a little foreign to my non-medical friends, but it is of significant concern. The loss of central line site access post-transplant is ultimately a life-threatening/life-limiting condition. We will do our best to protect this last site, though, and save that worry for another day…
Emerson has been having pain in and around her right kidney and we’ll try to sort through that today. She’s not feeling so hot this morning and, despite an incredibly high pain tolerance, all indicators this morning are that she’s pretty uncomfortable.
In positive new, though, we seem to have Emerson in a stable place with her electrolytes (requiring a ton of supplements and meds, but stable) & are formulating our exit plan today!! We’re booking a flight home to Colorado for next week…
There’s no place like HOME for the holidays!
6 thoughts on “There’s no place like home for the Holidays…”
God bless you all, Erika. There are just no words for all you do and the unbelievable decisions you are required to make that, as you say, most of us don’t even know what they mean. I admire your willingness to share such a difficult journey, because it really can put things into perspective for so many of us that take so very much for granted.
That was definitely a good news/ bad news post, but the best part is that you get to be home with your family for Christmas. I’m so happy for all of you! I will pray that Emerson’s pain lessens and that she has good days leading up to your return home. Hope to see you when you’re here.
We’ll be thinking of you all this Christmas.
Joy to the World!
Thanks for posting; I was anxious to hear about yesterday. So happy to hear about the MRI…thank goodness. I know there are still worries and a lot going on, but that is wonderful you are able to make plans to go home for Christmas. Prayers the pain eases and for improvement…….. Merry Christmas!
Please add me to your list. We have been following her since we went up to see Aiden and Sur introduced us.