It’s been a fairly quiet week with slow, steady progress towards our goal. We hit a snag on our med wean yesterday & are in a holding pattern now, but I have confidence that we’ll soon be moving in the right direction again. Slow & steady wins the race with Eme!
The biggest event of the week came a bit unexpectedly today… In trying to formulate a plan to address on-going pain, I asked the team to order x-ray images of Eme’s spine. She’s been complaining of back pain for a while & was limping a bit with PT yesterday. My suspicion for anything obvious was low, but I felt it was best to ‘rule it out’ while we’re here.
Well, much to my surprise (& everyone else’s too I think) the x-ray showed 2 compression fractures in Emerson’s spine – L3 & L4. Wow. I’ve been passing off her pain as largely behavioral & I feel terrible about that. She has an incredibly high pain tolerance and has probably been in real pain for a while. Sigh…
Everyone responded swiftly today. We had consults from the pain (acute & chronic) team and surgery & a call to Palliative and ortho. They added another long-term medication to address the pain (on top of ones they already added this week) and she will be fitted for a custom brace tomorrow. The x-ray also showed significant demineralization of her spine & all suspect it, and the fractures, are a likely result of her chronic osteoporosis.
Along with the pain, this is bringing Emerson a lot of anxiety & the team is addressing that as well. In all, we’ll be going home with many new meds to add to her already very long list. Her temperament this admission has been mediocre at best. The new meds helped her take a nice, peaceful nap this afternoon, though, & for that I am so thankful.
We’re still hoping to be set free this weekend, but this new development adds some complexity to the admission. Everyone is working hard to get her what she needs quickly, though, so we can go home :).
Bradley is joining us Friday evening & we’ll rent a car and drive back all together just as soon as we can. I have some holiday things planned for us here in Omaha & am very much looking forward to his company! It will be a nice distraction from long, repetitive days in the PICU.
In other news, I’ve been doing a lot of online holiday shopping to pass the time & am afraid the kids will be overloaded with Christmas joy this year – lucky them! And if I get to watch them open it all, no matter where we physically are (home hopefully, but anywhere we are all together will do)… lucky me!
Thanks for checking in!