Happy Summer! I hope this post finds everyone enjoying warm weather and lazy days 🙂 Our summer started out strong with big brother’s high school graduation, a few trips to the mountains, a short stay in Saint Louis, and a week at the beach with family. We were chugging along nicely, mostly oblivious to Emerson’s medical fragility, when reality stepped up to slap us in the face. Sadly Eme fell very ill, very quickly yesterday. She is in the PICU, intubated, & in septic shock. She’s growing gram negative rods in her blood. This one came out of left field for sure. She’d been doing well, running through sprinklers and playing games just the day before. She was so full of life… smiles & giggles (& grimaces too). Today she is silent, and summer has come to a screeching halt. As I sit in my recliner watching her chest rise to the sound of a ventilator, watching numbers cycle on a monitor overhead, and listening to the sound of persistent alarms, I am struck by how quickly life can change – how quickly we can forget & how quickly we can be reminded. I suppose, in a way, the forgetting is how I survive.
All in all Eme is holding her own & she is doing “okay”. Her little body just grew very tired today & she could no longer maintain her oxygen levels without some help. She is following a pretty predictable pattern so far, and I suspect her recovery will look familiar as well. It’s a mixed blessing – good that we know what to expect, but very sad that this has happened so many times now that we can predict the course. Overall I’m encouraged that time between episodes has grown longer and that quality of life in those times has undeniably improved. It’s been a while since Emerson has been this sick.
The plan for tonight is to keep her comfortable and let her rest. Hopefully she overheard and follows the rules. I’ll update again tomorrow, but leave you with pics from happier times – feeding goats at Grant’s Farm in Saint Louis. They loved her, she loved them (and we followed all proper immune suppression protocol afterwards, of course)… summer fun!