I so appreciate all your support and don’t want to leave you without a quick update. Emerson has had a critical and very difficult 24 hours. They’ve identified e-coli in her blood cultures in addition to Klebsiella and co-ag negative staph. Antibiotics are, by all accounts, treating the infection; but managing her organ system fallout from it, now, is proving to be a significant challenge.
Infection isn’t necessarily Emerson’s biggest threat. ID doctors are very good at finding drugs (or a combination of drugs) to treat just about anything. It’s recovering from the hit of infection that may ultimately prove to be insurmountable for her.
Eme remains intubated this evening on many med drips – some maintaining different organ functions, others treating critical electrolyte imbalances. The PICU doctor is pretty confident she’s developed cerebral salt wasting syndrome on top of DI. Together, & despite many drugs to prevent it, she had over 10 liters of urine output today. The consequence of that has been overwhelming and very difficult to manage. Her eyes are dark and sunken, but her little body is still puffy and retaining fluid.
I was expecting a crisis but never could have anticipated the vengeance with which it would arrive. Many many people have been involved and I’m thankful for a caring and compassionate staff that has also been caring for me; although my only focus, now, is on her…